Hi I’m Pat 67 yrs old . My first symptom was ear fullness and hearing loss. My GP referred me to ENT . Very long waiting list so I went down the private route. I saw an ENT consultant who checked out my ears and hearing. In the period between appointments I developed tinnitus and dizziness. He diagnosed Ménière’s and gave me betahistidine which made me feel very unwell so I came off it after a week. had a few months of feeling dreadful. Very dizzy very deaf , fatigue and feeling low. I realised that I was also getting increased migraine aura which I had not linked to my condition but after some research I believe I actually have vestibular migraine. I found a group on line which provides strategies to help with chronic dizziness and I have improved significantly. I have seen a neurologist and had a brain scan to check physical problems. Non reported. My GP prescribed propanalol. This seems to have significantly reduced aura migraines although I still feel head pressure. I also take magnesium supplements. My symptoms are very one sided. Left part of my head. Very affected by weather conditions and light quality. I feel that the medical profession are quite dismissive of what is a difficult condition to deal with and I would like to know exactly what is happening to produce these symptoms. It helps to know others are dealing with similar conditions and how they are tackling the symptoms.
Welcome to the forum, @Daviespat! We’re so glad you’ve joined us! This is a friendly community where everyone is eager to help and share their experiences. You’re definitely not alone in dealing with vestibular migraine, and many here can relate to what you’re going through.
If you haven’t already, I urge you to check out the Welcome Topic here: Welcome to mvertigo and the posting guidelines here: Please Read This Before Posting. They contain valuable information to help you navigate the forum and make the most of your experience here.
Feel free to share your thoughts, ask questions, and connect with others who understand the challenges of living with vestibular migraine. We’re all in this together!