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What helps you for the head pressure?

Im sorry for the ton of posts lately but this is all new to me and I don’t know who else to turn to.

Nothing is working for the pressure I’m feeling, it’s in the back of my head and temples, it’s a mix of pain and pressure and it goes down my neck and what it feels like my spine … this is a new symptom for me and I’m desperate for relief. I had a few episodes like this in the past but they were short one, this one is going on day 3 already and nothing, I’ve tried my abortive which is imitrex, ibuprofen, taking a nap, going out for distraction …nothing is doing the trick.

Is this one of the symptoms that only gets better when you finally find your miracle prophylactic or has anybody find any way to relieve this?

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prophylactic reduces it for me…ibuprofen works well as well.

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Hi Diana, I think this one is very common to us MAVers and for me personally, the only thing that has relieved it was Ami. I still do fight headaches and some days of neck ache, none to the degree of pre-Ami but I take Tylenol and aspirin combo. I don’t use the OTC migraine pain relievers that include caffeine since it scares me now. It can be a wonder worker to alleviate the pain or cause more dizziness… so, I steer clear.

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Sorry you have increased head pressure symptoms, it can be very uncomfortable.

Yes, prophylactic is the key. For me its Cefaly device, Amitriptyline and CBD oil, Had it better part of the day / every day for over two years and now it’s nearly gone.

For accute treatments, laying down in a quite room + Aspirin helps me, but not a lot, it mostly just keeps it from worsening. Sometimes humming the right tone can help gate the sensation / pain. Ice pack also can help sometimes. Also Cefaly does work for accute treatments as well, I would recommend looking into it.

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As I don’t get the migraine headache I cannot be sure but I think this might be one… ask @dizzy3. I had straight rear head pressure constantly but no pain and it was ‘rear head’ only for me but same pressure as the ‘full ear’ syndrome. It hung on well after preventatives started to work on other symptoms. Drastically reducing caffeine cleared it or at very least shifted it from being constant to episodic. So quitting caffeine might help. Helen

I believe the rear head pressure is actually the “migraine,” if I understand it correctly. My neurologist (Dr S) explained that with MAV migraine is in a different part of the brain than in classic migraine. In classic it’s the frontal lobes. In MAV it’s the part of the brain stem that controls balance (I believe it’s the cerebellum, from having researched it). Do everything you can to get rid of the headaches as they’re the “bad patches” that keep your background dizziness going. Reduce stress. Rest regularly, every day. Cut out your migraine triggers. I found the “Migraine Brain” a very useful book to learn about migraine and my triggers. It has lots of life style advice. Following some drastic changes in my lifestyle I can say that I’m now having fewer pressure headaches but still not completely rid of them.

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This makes so much sense!!! Ive suffered from classic migraines for the past 5 years and always had pain in the front and one side of my head (it could be either side but never both) and since the February crazy migraine episode that I’ve described in one of my previous posts I get two type of headaches now, the classic one that responds great to imitrex and I go on with my day as soon as it kicks in without seeing much difference in my dizziness and then the one with the pressure which is located in the back, I’ve had bad three times since February, it takes days to resolve and it definitely makes my dizziness worst

I posted on this thread initially but I only picked up on this comment yesterday. Don’t remember seeing it before. This rear head pressure stuff really is the crux. I remember having it constantly from the time mine went chronic (Dec. 2015) until last Spring (2018). It never seemed to leave. It’s intermittent now. I can get days without it and sometimes it comes but goes away again. Doesn’t last all day. It’s certainly the main sign balance is bad. With me it can sweep through. Less than ten minutes outside pegging out washing one day recently and it flooded in to about 9/10. Twenty minutes back indoors and it was virtually gone. Have you found the higher doses of Nori have taken in away yet. Helen