I just want to share the below email with all of you, apologies for any spelling mistake I am currently admitted in the hospital:
Dear Doc,
Hope you are doing well.
I just want to report this in the benefit of the other people & patient. I dont want them to go throw what i saw in these past days.
After consulting many doctors they advised me to take Covid-19 vaccine as it is not contradicting with my current medications: Nortriptyline, cipralex & emgality.
I was so worried because i was not aware if it fine to take the vaccine while being in emgality monthly injection. So I took the doctors advise and took the vaccine.
Few days after vaccine, I had high fever, my body is soo cold, I have rashes in my lips, the blood test results show that i have infection in the blood and the doctors concluded that the vaccine make my immune system down (i was already weak due to the medicine and injection i take) and i catch up with a unknown strong virus.
I was totally fine before the vaccine, except the headache & dizziness issue.
I am 33 years old & Currently I am suffering alot, I havet headache, dizziness, cant move my body, high fever, i feel like my body want to shut down.
Please study the patient history very well before advising weather to take the vaccine or no. Especially if they are taking any monthly injection.
I write this because i dont want any other person to suffer like me.
Hope,
Thank you for sharing with us, this could certainly help others here.
Please keep us updated and our thoughts will be with you! Hope you are getting the care you need to make a full recovery.
Reneeā
Most, of the few, sites that discussed it appeared to clam that the CGRP medications could have no affect on the immune system whatsoever however,
From the Robbins Headache Clinic, Chicago website
ā8. In your opinion, do these medications potentially impact the immune system even though officially they have been āmodifiedā so that this doesnāt happen?ā
āThe CGRP medications work on the immune system by dampening down the immune response. They specifically help reduce inflammation around the head which is theoretically caused by CGRP. However, we are not totally clear yet how these medications work, so there are a lot of questionsā
Every person is different. But my concern is the doctor should review the full history of the patient before advising wether to take the vaccine or no. In my case it was so clear not to take the vaccine but they keep pushing me to take it
I saw many people here in the hospital having infection in different part in the body and this happened to them after the pfizer vaccine also. At the same time i saw many people who took the vaccine without any side effect
I am booked in for a Pfizer vaccine on Wednesday. I had asked my neurologist whether Pfizer or Moderna would be better for me and she said that there is not much information about it yet. Her words were āit is your decisionā. I decided to go for Pfizer because it has only one third of the active ingredients compared to Moderna. It also seems that more people on this forum had problems with Moderna than with Pfizer.
I really hope that I donāt get a relapse or worse, an infection like you @Hope88.
Can you explain why? Are they actually saying the CGRP injections suppress the immune system?
In theory yes however in practice so little is known about the various mechanisms and side effects profile still Iām afraid I donāt really see how that helps. Doctors have no idea who or who isnāt going to react to the injections. I reacted badly to both and had a lengthy conversation to this effect with the on duty doctor immediately before the second dose. We also have to bear in mind lots of people who neither had VM nor had had Emgality have had bad reactions so bad reactions can just appear out of the blue in anyone anyway. And everybody on here knows how sensitive MAVers tend to be though no many doctors appreciate that fact. Doctors in most countries are just aiming for 100% compliance it seems in a bid to restore some sort of long term normality irrespective .
Off top my head (it is in my PD) two days first time. I felt so reassured. I had exactly the same reaction as the doctor journalist who writes in my husbands daily and heās healthy and much younger. No affect on the MAV whatsoever. No affect on my head. Second time, they say second dose is worse and they were right, about a month Iād say. Full on vestibular attack in bed eleven days I think it was and very slow recoveryā¦ I was visibly rocking three weeks in something Iād never done before. Strangely enough I didnāt realise that until the doctor saw me and told me. Now here in U.K. next demand is booster doses for all over 50s. Not looking forward to that. I had AZ but all boosters will be Pfizer or Moderna and I thought same as you about that but here I donāt think we get a choice just whatever that Centre is running at the time of your visit.
That is a severe reaction after your second dose. Here in Australia they say that people who get AstaZeneca have the most severe reactions after the first dose. As for Pfizer they say that the second dose is worse. But clearly, that is not always the case.
I am very worried about getting Pfizer, but I try my best to be as calm as possible. I think Iāll spend Wednesday morning listening to meditation tapes (my appointment is at lunch time).
What Iāve been told is if you react to No 1 the reaction to No 2 will be more severe. From a straw poll I think more reacted to AZ than Pfizer but the expert I spoke to said 50/50. Not too sure I can believe that but still. My straw poll was too small to be truly representative. They are so desperate to get jabs into arms I suspect truth might be going out the window rather as suits. Both my reactions were considered severe and had to be reported through the Official medical system. I did have severe vomiting with No 1, dry wretched for hours which is very unusual was told. Was just grateful it went stomach not head direction at the time. Various assumed vulnerable people I know were told to take Paracetamol immediately afterwards in anticipation but that wouldnāt have helped me. In anticipation before No 2 I got in a prescription for Domperidone which remains unopened. Canāt win eh. All I can suggest is you rest up the remainder of The Day. I think I remember thinking I was fine and going long walk after No 1 presumably not sure exactly when that occurred. Still can only hope the side effects are nowhere near as bad as having Covid.
I got dose one of Pfizer and just got sore arm and increase in dizziness and balance issues then returned back to my baseline. I have shot number 2 on Friday and Iām nervous to get it.
My doctor said get Pfizer because it offers the most protection but that was a long time ago so I donāt know if thatās true anymore but I did read itās natural ingredients.
Iām going to the doctor today and going to ask her why second shot is worse. She probably wonāt know though lol
I had my Pfizer vaccine yesterday. I went to my GPās surgery (as opposed to a vaccination hub) because I thought that if something goes wrong, my GP has all the information on my VM. My anxiety was through the roof, I was unable to calm myself down. My first words to the nurse who was going to administer the vaccine were āI am absolutely terrified, I need your help to calm me downā. The nurse was very good in reassuring me and then she gave me the jab. She said that I could wait in the treatment room for 30 minutes to make sure I was ok. Normally people wait in the waiting room for 15 minutes, but she could clearly see that I needed something else. The treatment room has five beds in it and I stayed in one of them for the whole 30 minutes. When I left, I felt ok.
As soon as I came home I put an ice-pack on my arm, made something to eat and then had a nap. Overall, I felt tired and a little nauseated, but it might be because of the anxiety and the lack of sleep the night before, and not necessarily because of the vaccine. I also had lost my appetite, something which is very unusual because the Pizotifen always makes me want to eat. So I just had a fruit salad for dinner. My arm started to become a bit painful in the evening, but the pain was very mild.
Today I am still tired, although I had a good nightās sleep. So I did not do much, except for some light work in the garden. And I had another nap.
I think the following things helped me:
I consciously relaxed my muscles in the upper arm before getting the jab
I put an ice-pack on my arm after the jab
I did not do much on the day of the vaccination and the day afterwards
Iāve noticed here in U.K. the administrating staff are meticulous in making absolutely sure the muscle about to be injected is completely relaxed. Throughout the campaign Iāve noticed they have been exceptionally compassionate and never in a hurry to āget onā which is amazing considering the numbers of people theyāve had to deal with.
Iām not offended. Iāve made it clear I wonāt be getting the vax.
I came across this video and it reminded me of the discussion about after effects going on in this thread. Both those and long covid sound like VM. Which I find very interesting.
