Hi, I’ve just joined this group, and am looking for some opinions/advice. I was recently diagnosed with vestibular migraine which was a shock to me! But when I look back over the last few years, I do have a lot of the symptoms…
In August 2019, I started experiencing ear pain (although I’ve been dealing with ear pain sporadically for several years). It was starting to get worse, and I was at the Dr 5 times between August and December. They kept treating it as an ear infection and prescribing antibiotics. My Dr. finally sent an ear swab to the lab, which came back as no infection and he sent me to ENT. They confirmed no infection, did an hearing test which was perfect. On hearing my symptoms, he diagnosed as VM.
My husband has had several health issues since August so I’m thinking that perhaps the stress, insomnia, and anxiety caused my VM symptoms to get worse?
I have had the dizziness, years ago, but lately, it’s more of a balance problem (feeling unsteady or like I’m going to fall). Or if I turn my head quickly, I feel like I will get dizzy. I’ve had a few auras over the last few years.
I was working full time until August, when I retired (retirement has not been good so far!!). I worked in a hospital, and a couple of years ago, I was having balance issues while walking down long bright hallways. I also went through a stage when it really bothered me to be in the bright, noisy conference rooms or cafeteria. I did have a bad fall in a hallway in the hospital a year ago and it was probably because I was a little unsteady. I also wonder if that makes my symptoms worse because now I’m always so afraid of falling!
Bright lights, and noise, definitely both me, and I still find it hard to go into a mall (I have to be having a good day, in order to be able to do that!). And for the last couple of years, I can not go down an escalator. I always have to take an elevator. When I get close to stepping onto an escalator, I feel unsteady like I’m going to fall and I can’t do it.
I know that exercise is supposed to help, but I can’t go for walks, because of the unsteady feeling when walking on uneven sidewalks. And I tried the gym, but because the mat of the treadmill is moving, that also bothers me.
The ENT specialist recommended magnesium, Q10 and B complex. My family dr had prescribed Serc when I was experiencing the balance problems when they thought it was an ear infection. I’ve been taking magnesium every day, which is helping. I take Serc if I’m having a bad day. I still have days though (like today) when I don’t feel “right” in the head (can’t really focus on things, or turn my head too quickly). The ENT also recommended Amitriptyline, but when I read about it, there are so many possible side effects that I’m avoiding it for now. I’m really sensitive to medicine (usually get the “rare” side effects) so I would only take it if it could be on an “as needed” basis.
I was doing a food diary but didn’t find anything that was an obvious cause. I’m having a bad week this week, and don’t know why. I think that’s one of the most frustrating parts of this. I want to be able to pinpoint the triggers. I’ve had a couple of coffees this week, but that doesn’t usually bother me, and our weather has been fine, so it’s not weather related. I played cards for a couple of hours on the weekend, and don’t know whether that might be a trigger?
So I guess my questions are if these symptoms sound like those that you have experienced (I guess I’m not totally convinced of the diagnosis), and I’m wondering if any of you are taking Serc and if it helps. I also wonder if many of you take Amitriptyline and if it helps with balance?
Thanks for any input!